NCPI FHIR Implementation Guide v2
0.1.0 - ci-build

NCPI FHIR Implementation Guide v2 - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

Module Overview

While interoperability is a primary objective for using FHIR, research data by it's very nature is quite varied. Much of the data requires approval before access is permitted, yet researchers must know the data exists before they can begin the approval process. Because of issues such as these, the IG itself is broken into modules designed to support specific use cases. For a FHIR server hosting a certain dataset, those building the ETL need only concern themselves with the modules that apply to the use cases describing the datasets they are working with.

Modular IG Design

Some use cases, such as the Data Dictionary component, may be useful across many or even all of the servers implementing the NCPI FHIR IG while others, such as Family Relationships, apply only to a fraction of those servers. Study summary and meta-data would likely lack traditional restrictions on their accessibility and could be hosted on a public server, while row-level, restricted data would be require some sort of authorization to access.

Administrators for these FHIR servers should selectively apply only those module profiles that apply to the machines expected use cases, providing clear delineation for what sorts of data can be found therein.

Table of Logical Models & Profiles

Name Logical Model FHIR Profile
Aliquot Shared Data Model for Aliquot Aliquot Profile
Biospecimen Collection Shared Data Model for Biospecimen Biospecimen Profile
Sample Shared Data Model for Sample Sample Profile
Family Relationship Shared Data Model for Family Relationship Family Relationship Profile
File Shared Data Model for File File Profile
Participant Shared Data Model for Participant Participant Profile
Person Shared Data Model for Person Person Profile
Research Collection Shared Data Model for Research Collection Research Collection Profile
Access Policy Shared Data Model for Access Policy Access Policy Profile
Study Participant Shared Data Model for Study Participant Study Participant Profile
Study Family Shared Data Model for Study Family Study Family Profile
Research Study Shared Data Model for Research Study Research Study Profile