NCPI FHIR Implementation Guide v2
0.2.0 - ci-build
NCPI FHIR Implementation Guide v2 - Local Development build (v0.2.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions
| Official URL: https://nih-ncpi.github.io/ncpi-fhir-ig-2/StructureDefinition/SharedDataModelStudyFamily | Version: 0.2.0 | |||
| Draft as of 2025-12-03 | Computable Name: CdmStudyFamily | |||
The Shared Data Model for Study Family
Usages:
You can also check for usages in the FHIR IG Statistics
Description of Profiles, Differentials, Snapshots and how the different presentations work.
| Name | Flags | Card. | Type | Description & Constraints Filter: ![]() ![]() |
|---|---|---|---|---|
![]() |
0..* | Base | Shared Data Model for Study Family | |
![]() ![]() |
1..1 | string | Unique study family identifier. System identifier used for internal references. | |
![]() ![]() |
0..* | string | Study family identifier. System identifier used for external references. | |
![]() ![]() |
0..1 | code | Describes the 'type' of study family, eg, trio. | |
![]() ![]() |
0..1 | string | Free text describing the study family, such as potential inheritance or details about consanguinity | |
![]() ![]() |
0..1 | code | Is there known or suspected consanguinity in this study family? | |
![]() ![]() |
0..1 | code | What is this study family investigating? EG, a specific condition | |
Documentation for this format | ||||
This structure is derived from Base
| Name | Flags | Card. | Type | Description & Constraints Filter: ![]() ![]() |
|---|---|---|---|---|
![]() |
0..* | Base | Shared Data Model for Study Family | |
![]() ![]() |
1..1 | string | Unique study family identifier. System identifier used for internal references. | |
![]() ![]() |
0..* | string | Study family identifier. System identifier used for external references. | |
![]() ![]() |
0..1 | code | Describes the 'type' of study family, eg, trio. | |
![]() ![]() |
0..1 | string | Free text describing the study family, such as potential inheritance or details about consanguinity | |
![]() ![]() |
0..1 | code | Is there known or suspected consanguinity in this study family? | |
![]() ![]() |
0..1 | code | What is this study family investigating? EG, a specific condition | |
Documentation for this format | ||||
| Name | Flags | Card. | Type | Description & Constraints Filter: ![]() ![]() |
|---|---|---|---|---|
![]() |
0..* | Base | Shared Data Model for Study Family | |
![]() ![]() |
1..1 | string | Unique study family identifier. System identifier used for internal references. | |
![]() ![]() |
0..* | string | Study family identifier. System identifier used for external references. | |
![]() ![]() |
0..1 | code | Describes the 'type' of study family, eg, trio. | |
![]() ![]() |
0..1 | string | Free text describing the study family, such as potential inheritance or details about consanguinity | |
![]() ![]() |
0..1 | code | Is there known or suspected consanguinity in this study family? | |
![]() ![]() |
0..1 | code | What is this study family investigating? EG, a specific condition | |
Documentation for this format | ||||
This structure is derived from Base
Key Elements View
| Name | Flags | Card. | Type | Description & Constraints Filter: ![]() ![]() |
|---|---|---|---|---|
![]() |
0..* | Base | Shared Data Model for Study Family | |
![]() ![]() |
1..1 | string | Unique study family identifier. System identifier used for internal references. | |
![]() ![]() |
0..* | string | Study family identifier. System identifier used for external references. | |
![]() ![]() |
0..1 | code | Describes the 'type' of study family, eg, trio. | |
![]() ![]() |
0..1 | string | Free text describing the study family, such as potential inheritance or details about consanguinity | |
![]() ![]() |
0..1 | code | Is there known or suspected consanguinity in this study family? | |
![]() ![]() |
0..1 | code | What is this study family investigating? EG, a specific condition | |
Documentation for this format | ||||
Differential View
This structure is derived from Base
| Name | Flags | Card. | Type | Description & Constraints Filter: ![]() ![]() |
|---|---|---|---|---|
![]() |
0..* | Base | Shared Data Model for Study Family | |
![]() ![]() |
1..1 | string | Unique study family identifier. System identifier used for internal references. | |
![]() ![]() |
0..* | string | Study family identifier. System identifier used for external references. | |
![]() ![]() |
0..1 | code | Describes the 'type' of study family, eg, trio. | |
![]() ![]() |
0..1 | string | Free text describing the study family, such as potential inheritance or details about consanguinity | |
![]() ![]() |
0..1 | code | Is there known or suspected consanguinity in this study family? | |
![]() ![]() |
0..1 | code | What is this study family investigating? EG, a specific condition | |
Documentation for this format | ||||
Snapshot View
| Name | Flags | Card. | Type | Description & Constraints Filter: ![]() ![]() |
|---|---|---|---|---|
![]() |
0..* | Base | Shared Data Model for Study Family | |
![]() ![]() |
1..1 | string | Unique study family identifier. System identifier used for internal references. | |
![]() ![]() |
0..* | string | Study family identifier. System identifier used for external references. | |
![]() ![]() |
0..1 | code | Describes the 'type' of study family, eg, trio. | |
![]() ![]() |
0..1 | string | Free text describing the study family, such as potential inheritance or details about consanguinity | |
![]() ![]() |
0..1 | code | Is there known or suspected consanguinity in this study family? | |
![]() ![]() |
0..1 | code | What is this study family investigating? EG, a specific condition | |
Documentation for this format | ||||
This structure is derived from Base