NCPI FHIR Implementation Guide v2
0.1.0 - ci-build
NCPI FHIR Implementation Guide v2 - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions
| Draft as of 2024-11-25 |
Definitions for the SharedDataModelResearchDataAccessPolicy logical model.
Guidance on how to interpret the contents of this table can be found here
| 0. SharedDataModelResearchDataAccessPolicy | |
| Definition | The Shared Data Model for Research Data Access Policy represent the various Data Use Agreements that govern a researcher's access and use of research data. |
| Short | Shared Data Model for Research Data Access Policy |
| Logical Model | Instances of this logical model are not marked to be the target of a Reference |
| 2. SharedDataModelResearchDataAccessPolicy.policyCode | |
| Definition | Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes. |
| Short | Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes. |
| Control | 1..* |
| Binding | The codes SHALL be taken from Research Data Access Codes (required to https://nih-ncpi.github.io/ncpi-fhir-ig-2/ValueSet/research-data-access-code-vs) |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 4. SharedDataModelResearchDataAccessPolicy.description | |
| Definition | Free text further describing the policy, including description of necessary steps for gaining access to data |
| Short | Free text further describing the policy, including description of necessary steps for gaining access to data |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 6. SharedDataModelResearchDataAccessPolicy.website | |
| Definition | TBD |
| Short | TBD |
| Control | 0..1 |
| Type | url |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
Guidance on how to interpret the contents of this table can be found here
| 0. SharedDataModelResearchDataAccessPolicy | |
| Definition | The Shared Data Model for Research Data Access Policy represent the various Data Use Agreements that govern a researcher's access and use of research data. |
| Short | Shared Data Model for Research Data Access Policy |
| Control | 0..* |
| Is Modifier | false |
| Logical Model | Instances of this logical model are not marked to be the target of a Reference |
| 2. SharedDataModelResearchDataAccessPolicy.policyCode | |
| Definition | Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes. |
| Short | Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes. |
| Control | 1..* |
| Binding | The codes SHALL be taken from Research Data Access Codes (required to https://nih-ncpi.github.io/ncpi-fhir-ig-2/ValueSet/research-data-access-code-vs) |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 4. SharedDataModelResearchDataAccessPolicy.description | |
| Definition | Free text further describing the policy, including description of necessary steps for gaining access to data |
| Short | Free text further describing the policy, including description of necessary steps for gaining access to data |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 6. SharedDataModelResearchDataAccessPolicy.website | |
| Definition | TBD |
| Short | TBD |
| Control | 0..1 |
| Type | url |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
Guidance on how to interpret the contents of this table can be found here
| 0. SharedDataModelResearchDataAccessPolicy | |
| Definition | The Shared Data Model for Research Data Access Policy represent the various Data Use Agreements that govern a researcher's access and use of research data. |
| Short | Shared Data Model for Research Data Access Policy |
| Control | 0..* |
| Is Modifier | false |
| Logical Model | Instances of this logical model are not marked to be the target of a Reference |
| 2. SharedDataModelResearchDataAccessPolicy.policyCode | |
| Definition | Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes. |
| Short | Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes. |
| Control | 1..* |
| Binding | The codes SHALL be taken from Research Data Access Codes (required to https://nih-ncpi.github.io/ncpi-fhir-ig-2/ValueSet/research-data-access-code-vs) |
| Type | code |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 4. SharedDataModelResearchDataAccessPolicy.description | |
| Definition | Free text further describing the policy, including description of necessary steps for gaining access to data |
| Short | Free text further describing the policy, including description of necessary steps for gaining access to data |
| Control | 1..1 |
| Type | string |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |
| 6. SharedDataModelResearchDataAccessPolicy.website | |
| Definition | TBD |
| Short | TBD |
| Control | 0..1 |
| Type | url |
| Primitive Value | This primitive element may be present, or absent, or replaced by an extension |