NCPI FHIR Implementation Guide v2
0.1.0 - ci-build
NCPI FHIR Implementation Guide v2 - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions
| Draft as of 2024-09-26 |
JSON representation of the SharedDataModelResearchDataAccessPolicy logical model.
{
"resourceType" : "StructureDefinition",
"id" : "SharedDataModelResearchDataAccessPolicy",
"text" : {
"status" : "extensions",
"div" : "<div xmlns=\"http://www.w3.org/1999/xhtml\"><p class=\"res-header-id\"><b>Generated Narrative: StructureDefinition SharedDataModelResearchDataAccessPolicy</b></p><a name=\"SharedDataModelResearchDataAccessPolicy\"> </a><a name=\"hcSharedDataModelResearchDataAccessPolicy\"> </a><a name=\"SharedDataModelResearchDataAccessPolicy-en-US\"> </a><table border=\"0\" cellpadding=\"0\" cellspacing=\"0\" style=\"border: 0px #F0F0F0 solid; font-size: 11px; font-family: verdana; vertical-align: top;\"><tr style=\"border: 1px #F0F0F0 solid; font-size: 11px; font-family: verdana; vertical-align: top\"><th style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"https://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#table-views\" title=\"The logical name of the element\">Name</a></th><th style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"https://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#table-views\" title=\"Information about the use of the element\">Flags</a></th><th style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"https://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#table-views\" title=\"Minimum and Maximum # of times the element can appear in the instance\">Card.</a></th><th style=\"width: 100px\" class=\"hierarchy\"><a href=\"https://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#table-views\" title=\"Reference to the type of the element\">Type</a></th><th style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"https://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#table-views\" title=\"Additional information about the element\">Description & Constraints</a><span style=\"float: right\"><a href=\"https://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#table-views\" title=\"Legend for this format\"><img src=\"data:image/png;base64,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\" alt=\"doco\" style=\"background-color: inherit\"/></a></span></th></tr><tr style=\"border: 0px #F0F0F0 solid; padding:0px; vertical-align: top; background-color: white\"><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px; white-space: nowrap; background-image: url(tbl_bck1.png)\" class=\"hierarchy\"><img src=\"tbl_spacer.png\" alt=\".\" style=\"background-color: inherit\" class=\"hierarchy\"/><img src=\"icon_element.gif\" alt=\".\" style=\"background-color: white; background-color: inherit\" title=\"Element\" class=\"hierarchy\"/> <a href=\"StructureDefinition-SharedDataModelResearchDataAccessPolicy-definitions.html#SharedDataModelResearchDataAccessPolicy\" title=\"The **Shared Data Model for Research Data Access Policy** represent the various Data Use Agreements that govern a researcher's access and use of research data.\">SharedDataModelResearchDataAccessPolicy</a><a name=\"SharedDataModelResearchDataAccessPolicy\"> </a></td><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"/><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><span style=\"opacity: 0.5\">0</span><span style=\"opacity: 0.5\">..</span><span style=\"opacity: 0.5\">*</span></td><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"http://build.fhir.org/types.html#Base\">Base</a></td><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\">Shared Data Model for Research Data Access Policy<br/><span style=\"font-weight:bold\">Instances of this logical model are not marked to be the target of a Reference</span></td></tr>\r\n<tr style=\"border: 0px #F0F0F0 solid; padding:0px; vertical-align: top; background-color: #F7F7F7\"><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px; white-space: nowrap; background-image: url(tbl_bck10.png)\" class=\"hierarchy\"><img src=\"tbl_spacer.png\" alt=\".\" style=\"background-color: inherit\" class=\"hierarchy\"/><img src=\"tbl_vjoin.png\" alt=\".\" style=\"background-color: inherit\" class=\"hierarchy\"/><img src=\"icon_primitive.png\" alt=\".\" style=\"background-color: #F7F7F7; background-color: inherit\" title=\"Primitive Data Type\" class=\"hierarchy\"/> <a href=\"StructureDefinition-SharedDataModelResearchDataAccessPolicy-definitions.html#SharedDataModelResearchDataAccessPolicy.policyCode\" title=\"Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes.\">policyCode</a><a name=\"SharedDataModelResearchDataAccessPolicy.policyCode\"> </a></td><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"/><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\">1..*</td><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"http://hl7.org/fhir/R4B/datatypes.html#code\">code</a></td><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\">Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes.<br/><span style=\"font-weight:bold\">Binding: </span><a href=\"ValueSet-research-data-access-code-vs.html\" title=\"https://nih-ncpi.github.io/ncpi-fhir-ig-2/ValueSet/research-data-access-code-vs\">Research Data Access Codes</a> (<a href=\"http://hl7.org/fhir/R4B/terminologies.html#required\" title=\"To be conformant, the concept in this element SHALL be from the specified value set.\">required</a>)<br/></td></tr>\r\n<tr style=\"border: 0px #F0F0F0 solid; padding:0px; vertical-align: top; background-color: white\"><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px; white-space: nowrap; background-image: url(tbl_bck10.png)\" class=\"hierarchy\"><img src=\"tbl_spacer.png\" alt=\".\" style=\"background-color: inherit\" class=\"hierarchy\"/><img src=\"tbl_vjoin.png\" alt=\".\" style=\"background-color: inherit\" class=\"hierarchy\"/><img src=\"icon_primitive.png\" alt=\".\" style=\"background-color: white; background-color: inherit\" title=\"Primitive Data Type\" class=\"hierarchy\"/> <a href=\"StructureDefinition-SharedDataModelResearchDataAccessPolicy-definitions.html#SharedDataModelResearchDataAccessPolicy.description\" title=\"Free text further describing the policy, including description of necessary steps for gaining access to data\">description</a><a name=\"SharedDataModelResearchDataAccessPolicy.description\"> </a></td><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"/><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\">1..1</td><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"http://hl7.org/fhir/R4B/datatypes.html#string\">string</a></td><td style=\"vertical-align: top; text-align : left; background-color: white; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\">Free text further describing the policy, including description of necessary steps for gaining access to data</td></tr>\r\n<tr style=\"border: 0px #F0F0F0 solid; padding:0px; vertical-align: top; background-color: #F7F7F7\"><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px; white-space: nowrap; background-image: url(tbl_bck00.png)\" class=\"hierarchy\"><img src=\"tbl_spacer.png\" alt=\".\" style=\"background-color: inherit\" class=\"hierarchy\"/><img src=\"tbl_vjoin_end.png\" alt=\".\" style=\"background-color: inherit\" class=\"hierarchy\"/><img src=\"icon_primitive.png\" alt=\".\" style=\"background-color: #F7F7F7; background-color: inherit\" title=\"Primitive Data Type\" class=\"hierarchy\"/> <a href=\"StructureDefinition-SharedDataModelResearchDataAccessPolicy-definitions.html#SharedDataModelResearchDataAccessPolicy.website\" title=\"TBD\">website</a><a name=\"SharedDataModelResearchDataAccessPolicy.website\"> </a></td><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"/><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\">0..1</td><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\"><a href=\"http://hl7.org/fhir/R4B/datatypes.html#url\">url</a></td><td style=\"vertical-align: top; text-align : left; background-color: #F7F7F7; border: 0px #F0F0F0 solid; padding:0px 4px 0px 4px\" class=\"hierarchy\">TBD</td></tr>\r\n<tr><td colspan=\"5\" class=\"hierarchy\"><br/><a href=\"https://build.fhir.org/ig/FHIR/ig-guidance/readingIgs.html#table-views\" title=\"Legend for this format\"><img src=\"data:image/png;base64,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\" alt=\"doco\" style=\"background-color: inherit\"/> Documentation for this format</a></td></tr></table></div>"
},
"url" : "https://nih-ncpi.github.io/ncpi-fhir-ig-2/StructureDefinition/SharedDataModelResearchDataAccessPolicy",
"version" : "0.1.0",
"name" : "CdmResearchDataAccessPolicy",
"title" : "Shared Data Model for Research Data Access Policy",
"status" : "draft",
"date" : "2024-09-26T19:08:25+00:00",
"publisher" : "NCPI FHIR Working Group",
"contact" : [
{
"name" : "NCPI FHIR Working Group",
"telecom" : [
{
"system" : "url",
"value" : "http://example.org/example-publisher"
},
{
"system" : "email",
"value" : "ncpi-fhir-ig@googlegroups.com"
}
]
}
],
"description" : "The **Shared Data Model for Research Data Access Policy** represent the various Data Use Agreements that govern a researcher's access and use of research data.",
"fhirVersion" : "4.3.0",
"kind" : "logical",
"abstract" : false,
"type" : "https://nih-ncpi.github.io/ncpi-fhir-ig-2/StructureDefinition/SharedDataModelResearchDataAccessPolicy",
"baseDefinition" : "http://hl7.org/fhir/StructureDefinition/Base",
"derivation" : "specialization",
"snapshot" : {
"element" : [
{
"id" : "SharedDataModelResearchDataAccessPolicy",
"path" : "SharedDataModelResearchDataAccessPolicy",
"short" : "Shared Data Model for Research Data Access Policy",
"definition" : "The **Shared Data Model for Research Data Access Policy** represent the various Data Use Agreements that govern a researcher's access and use of research data.",
"min" : 0,
"max" : "*",
"base" : {
"path" : "Base",
"min" : 0,
"max" : "*"
},
"isModifier" : false
},
{
"id" : "SharedDataModelResearchDataAccessPolicy.policyCode",
"path" : "SharedDataModelResearchDataAccessPolicy.policyCode",
"short" : "Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes.",
"definition" : "Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes.",
"min" : 1,
"max" : "*",
"base" : {
"path" : "SharedDataModelResearchDataAccessPolicy.policyCode",
"min" : 1,
"max" : "*"
},
"type" : [
{
"code" : "code"
}
],
"binding" : {
"strength" : "required",
"valueSet" : "https://nih-ncpi.github.io/ncpi-fhir-ig-2/ValueSet/research-data-access-code-vs"
}
},
{
"id" : "SharedDataModelResearchDataAccessPolicy.description",
"path" : "SharedDataModelResearchDataAccessPolicy.description",
"short" : "Free text further describing the policy, including description of necessary steps for gaining access to data",
"definition" : "Free text further describing the policy, including description of necessary steps for gaining access to data",
"min" : 1,
"max" : "1",
"base" : {
"path" : "SharedDataModelResearchDataAccessPolicy.description",
"min" : 1,
"max" : "1"
},
"type" : [
{
"code" : "string"
}
]
},
{
"id" : "SharedDataModelResearchDataAccessPolicy.website",
"path" : "SharedDataModelResearchDataAccessPolicy.website",
"short" : "TBD",
"definition" : "TBD",
"min" : 0,
"max" : "1",
"base" : {
"path" : "SharedDataModelResearchDataAccessPolicy.website",
"min" : 0,
"max" : "1"
},
"type" : [
{
"code" : "url"
}
]
}
]
},
"differential" : {
"element" : [
{
"id" : "SharedDataModelResearchDataAccessPolicy",
"path" : "SharedDataModelResearchDataAccessPolicy",
"short" : "Shared Data Model for Research Data Access Policy",
"definition" : "The **Shared Data Model for Research Data Access Policy** represent the various Data Use Agreements that govern a researcher's access and use of research data."
},
{
"id" : "SharedDataModelResearchDataAccessPolicy.policyCode",
"path" : "SharedDataModelResearchDataAccessPolicy.policyCode",
"short" : "Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes.",
"definition" : "Enumerated values that describe the policy including: dbGaP consent codes, DUO Terms among others. The bindings to these terms should enable groups to create their own codes.",
"min" : 1,
"max" : "*",
"type" : [
{
"code" : "code"
}
],
"binding" : {
"strength" : "required",
"valueSet" : "https://nih-ncpi.github.io/ncpi-fhir-ig-2/ValueSet/research-data-access-code-vs"
}
},
{
"id" : "SharedDataModelResearchDataAccessPolicy.description",
"path" : "SharedDataModelResearchDataAccessPolicy.description",
"short" : "Free text further describing the policy, including description of necessary steps for gaining access to data",
"definition" : "Free text further describing the policy, including description of necessary steps for gaining access to data",
"min" : 1,
"max" : "1",
"type" : [
{
"code" : "string"
}
]
},
{
"id" : "SharedDataModelResearchDataAccessPolicy.website",
"path" : "SharedDataModelResearchDataAccessPolicy.website",
"short" : "TBD",
"definition" : "TBD",
"min" : 0,
"max" : "1",
"type" : [
{
"code" : "url"
}
]
}
]
}
}