NCPI FHIR Implementation Guide v2
0.2.0 - ci-build

NCPI FHIR Implementation Guide v2 - Local Development build (v0.2.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

ValueSet: Research Data Access Codes

Official URL: https://nih-ncpi.github.io/ncpi-fhir-ig-2/ValueSet/research-data-access-code-vs Version: 0.2.0
Draft as of 2026-02-06 Computable Name: ResearchDataAccessCodeVS

Enumerated list of access codes such as dbGaP consent codes among others.

References

Logical Definition (CLD)

 

Expansion

Expansion performed internally based on codesystem Research Data Access Codes v0.2.0 (CodeSystem)

This value set contains 10 concepts

SystemCodeDisplay (en)JSONXML
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  GRUGeneral Research Use
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  HMBHealth/Medical/Biomedical
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  DSDisease-Specific (Disease/Trait/Exposure)
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  IRBIRB approval required
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  PUBPublication required
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  COLCollaboration Required
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  NPUNot-for-profit use only
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  MDSMethods
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  GSOGenetic studies only
https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/research-data-access-code  GSRGenomic Summary Results

Explanation of the columns that may appear on this page:

Level A few code lists that FHIR defines are hierarchical - each code is assigned a level. In this scheme, some codes are under other codes, and imply that the code they are under also applies
System The source of the definition of the code (when the value set draws in codes defined elsewhere)
Code The code (used as the code in the resource instance)
Display The display (used in the display element of a Coding). If there is no display, implementers should not simply display the code, but map the concept into their application
Definition An explanation of the meaning of the concept
Comments Additional notes about how to use the code