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Research Study Example Cbtn

The following example resources represent the elements required for representing the research study, Children's Brain Tumor Network in FHIR.

TODO: Write a detailed explanation of how each of these resources fit together under the examples menu option (which doesn't currently exist…). Until I have time for that, this list should be comprehensive.

CHOP Organization

• Children's Hospital of Philadelphia

Kids First Research Study Collections

• Research Collection X01s
• Research Collection PBTA

CBTN Research Study

• Research Study Children's Brain Tumor Network

Access Policies

CBTN GRU data access access via DAC

• Consent GRU via DAC
• Participant Group consented under GRU via DAC

CBTN GRU data access via dbGaP

• Consent GRU via dbGaP
• Participant Group consented under GRU via dbGaP

CBTN Genomic Summary Results (GSR) Allowed Access

• Consent GSR Allowed
• Participant Group consented under GSR Allowed

CBTN Registered Tier Access

• Consent Registered Access
• Participant Group consented under Registered Access

Miscellaneous Resources

• Research Study Role dbGaP PI, X01
• Research Study Role dbGaP PI
• Research Study Role Operations Lead