NCPI FHIR Implementation Guide v2
0.2.0 - ci-build

NCPI FHIR Implementation Guide v2 - Local Development build (v0.2.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

: Example patients based on data from PCGC - XML Representation

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<Patient xmlns="http://hl7.org/fhir">
  <id value="PT-006SP675"/>
  <meta>
    <profile
             value="https://nih-ncpi.github.io/ncpi-fhir-ig-2/StructureDefinition/ncpi-participant"/>
  </meta>
  <text>
    <status value="generated"/>
    <div xmlns="http://www.w3.org/1999/xhtml"><p class="res-header-id"><b>Generated Narrative: Patient PT-006SP675</b></p><a name="PT-006SP675"> </a><a name="hcPT-006SP675"> </a><div style="display: inline-block; background-color: #d9e0e7; padding: 6px; margin: 4px; border: 1px solid #8da1b4; border-radius: 5px; line-height: 60%"><p style="margin-bottom: 0px"/><p style="margin-bottom: 0px">Profile: <a href="StructureDefinition-ncpi-participant.html">NCPI Participant</a></p></div><p style="border: 1px #661aff solid; background-color: #e6e6ff; padding: 10px;">Anonymous Patient (no stated gender), DoB:  ( http://chdgenes.org/#20757)</p><hr/><table class="grid"><tr><td style="background-color: #f3f5da" title="Other Id (see the one above)">Other Id:</td><td colspan="3"><code>http://chdgenes.org/</code>/PT_005B7CZ4</td></tr><tr><td style="background-color: #f3f5da" title="Link study related sources back to the relevant study."><a href="StructureDefinition-part-of-study.html">Part of Study</a></td><td colspan="3"><a href="ResearchStudy-kf-research-study-cbtn.html">ResearchStudy Children's Brain Tumor Network (CBTN)</a></td></tr><tr><td style="background-color: #f3f5da" title="Concepts classifying the person into a named category of humans sharing common history, traits, geographical origin or nationality.  The ethnicity codes used to represent these concepts are based upon the [CDC ethnicity and Ethnicity Code Set Version 1.0](http://www.cdc.gov/phin/resources/vocabulary/index.html) which includes over 900 concepts for representing race and ethnicity of which 43 reference ethnicity.  The ethnicity concepts are grouped by and pre-mapped to the 2 OMB ethnicity categories: - Hispanic or Latino - Not Hispanic or Latino.">US Core Ethnicity Extension:</td><td colspan="3"><ul><li>ombCategory: <a href="http://terminology.hl7.org/6.2.0/CodeSystem-CDCREC.html#CDCREC-2135-2">CDC Race and Ethnicity: 2135-2</a> (Hispanic or Latino)</li><li>text: Hispanic or Latino</li></ul></td></tr><tr><td style="background-color: #f3f5da" title="A code classifying the person's sex assigned at birth  as specified by the [Office of the National Coordinator for Health IT (ONC)](https://www.healthit.gov/newsroom/about-onc). This extension aligns with the C-CDA Birth Sex Observation (LOINC 76689-9). After version 6.0.0, this extension is no longer a *USCDI Requirement*."><a href="http://hl7.org/fhir/us/core/STU6.1/StructureDefinition-us-core-birthsex.html">US Core Birth Sex Extension</a></td><td colspan="3">F</td></tr><tr><td style="background-color: #f3f5da" title="Concepts classifying the person into a named category of humans sharing common history, traits, geographical origin or nationality.  The race codes used to represent these concepts are based upon the [CDC Race and Ethnicity Code Set Version 1.0](http://www.cdc.gov/phin/resources/vocabulary/index.html#3) which includes over 900 concepts for representing race and ethnicity of which 921 reference race.  The race concepts are grouped by and pre-mapped to the 5 OMB race categories:

 - American Indian or Alaska Native
 - Asian
 - Black or African American
 - Native Hawaiian or Other Pacific Islander
 - White.">US Core Race Extension:</td><td colspan="3"><ul><li>ombCategory: <a href="http://terminology.hl7.org/6.2.0/CodeSystem-CDCREC.html#CDCREC-2106-3">CDC Race and Ethnicity: 2106-3</a> (White)</li><li>text: White</li></ul></td></tr></table></div>
  </text>
  <extension
             url="http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex">
    <valueCode value="F"/>
  </extension>
  <extension
             url="http://hl7.org/fhir/us/core/StructureDefinition/us-core-race">
    <extension url="ombCategory">
      <valueCoding>
        <system value="urn:oid:2.16.840.1.113883.6.238"/>
        <code value="2106-3"/>
        <display value="White"/>
      </valueCoding>
    </extension>
    <extension url="text">
      <valueString value="White"/>
    </extension>
  </extension>
  <extension
             url="http://hl7.org/fhir/us/core/StructureDefinition/us-core-ethnicity">
    <extension url="ombCategory">
      <valueCoding>
        <system value="urn:oid:2.16.840.1.113883.6.238"/>
        <code value="2135-2"/>
        <display value="Hispanic or Latino"/>
      </valueCoding>
    </extension>
    <extension url="text">
      <valueString value="Hispanic or Latino"/>
    </extension>
  </extension>
  <extension
             url="https://nih-ncpi.github.io/ncpi-fhir-ig-2/StructureDefinition/part-of-study">
    <valueReference>🔗 
      <reference value="ResearchStudy/kf-research-study-cbtn"/>
    </valueReference>
  </extension>
  <identifier>
    <system value="http://chdgenes.org/"/>
    <value value="20757"/>
  </identifier>
  <identifier>
    <system value="http://chdgenes.org/"/>
    <value value="PT_005B7CZ4"/>
  </identifier>
  <birthDate>
    <extension
               url="http://hl7.org/fhir/StructureDefinition/cqf-relativeDateTime">
      <extension url="target">
        <valueReference>🔗 
          <reference value="Patient/PT-006SP675"/>
        </valueReference>
      </extension>
      <extension url="targetPath">
        <valueString value="birthDate"/>
      </extension>
      <extension url="relationship">
        <valueCode value="after"/>
      </extension>
      <extension url="offset">
        <valueDuration>
          <value value="2006"/>
          <unit value="d"/>
          <system value="http://unitsofmeasure.org"/>
          <code value="days"/>
        </valueDuration>
      </extension>
    </extension>
  </birthDate>
</Patient>