NCPI FHIR Implementation Guide v2
0.1.0 - ci-build

NCPI FHIR Implementation Guide v2 - Local Development build (v0.1.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

: Kids First X01s - XML Representation

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<List xmlns="http://hl7.org/fhir">
  <id value="ncpi-research-collection-kfx01"/>
  <meta>
    <profile
             value="https://nih-ncpi.github.io/ncpi-fhir-ig-2/StructureDefinition/ncpi-research-collection"/>
  </meta>
  <text>
    <status value="generated"/>
    <div xmlns="http://www.w3.org/1999/xhtml"><p class="res-header-id"><b>Generated Narrative: List ncpi-research-collection-kfx01</b></p><a name="ncpi-research-collection-kfx01"> </a><a name="hcncpi-research-collection-kfx01"> </a><a name="ncpi-research-collection-kfx01-en-US"> </a><h2>Kids First X01s</h2><table class="clstu"><tr><td>Mode: Snapshot List </td><td>Status: Current </td><td>Code: Program </td></tr><tr><td/></tr></table>Through its Data Resource Center and NIH X01 grant mechanism, Kids First supports data generation and data sharing in the cloud. To date, the program has supported the public release of data from 30 projects and made available nearly 30,000 genomes, representing structural birth defects and childhood cancer patients and families through the Kids First Data Resource Portal<table class="grid"><tr style="backgound-color: #eeeeee"><td><b>Items</b></td></tr><tr><td><a href="ResearchStudy-kf-research-study-cbtn.html">ResearchStudy Children's Brain Tumor Network (CBTN)</a></td></tr></table></div>
  </text>
  <extension
             url="https://nih-ncpi.github.io/ncpi-fhir-ig-2/StructureDefinition/research-web-Link">
    <valueUrl value="https://cbtn.org/pediatric-brain-tumor-atlas"/>
  </extension>
  <status value="current"/>
  <mode value="snapshot"/>
  <title value="Kids First X01s"/>
  <code>
    <coding>
      <system
              value="https://nih-ncpi.github.io/ncpi-fhir-ig-2/CodeSystem/collection-type"/>
      <code value="program"/>
      <display value="Program"/>
    </coding>
  </code>
  <note>
    <text
          value="Through its Data Resource Center and NIH X01 grant mechanism, Kids First supports data generation and data sharing in the cloud. To date, the program has supported the public release of data from 30 projects and made available nearly 30,000 genomes, representing structural birth defects and childhood cancer patients and families through the Kids First Data Resource Portal"/>
  </note>
  <entry>
    <item>🔗 
      <reference value="ResearchStudy/kf-research-study-cbtn"/>
    </item>
  </entry>
</List>